WHO IS HAEi?

HAE International (HAEi) is the global umbrella organization for the world’s hereditary angioedema (HAE) patients groups.

HAE International (HAEi) is a global non-profit network of patient associations dedicated to improving the lives of people with HAE.

We are a group of compassionate HAE patients and care givers who make it our life’s work to raise awareness of hereditary angioedema (HAE), improve time to diagnosis, and fiercely advocate for approval and reimbursement of lifesaving therapies to everyone suffering from HAE.

We provide our member organizations with specially designed tools and technical assistance that promote disease education and support activities addressing the unique needs of HAE patients and their families.

HAEi is company and product neutral and enthusiastically supports drug discovery research aimed at the next generation of HAE therapies. Our great success in supporting clinical trials has resulted in a variety of approved therapeutic options. We work closely with expert physicians to continuously encourage a tailored, patient-focused approach to the use of available therapeutic options.

In addition, HAEi has partnered with GA2LEN (a non-profit organization of leading clinical and research facilities in the field of allergy and asthma) to establish the GA2LEN/HAEi Angioedema Centers of Reference and Excellence – commonly referred to as ACARE.
The ACARE centers work closely with HAEi and our member organizations to further enhance the quality and consistency of clinical care and create a robust environment for local and global HAE research.

HAEi’s organizational structure and staffing reflects our global footprint. In addition to our advocacy, operations, and technical teams, we have 8 highly talented and accomplished Regional Patient Advocates (RPA) who possess great familiarity with the region of the world that they serve. The RPAs – who work closely with leadership – form HAEi’s operational backbone and are led by our Chief RPA. These proven advocacy leaders are the “on the ground forces” to implement HAEi’s programs, activities, and services.

Click here to see an overview of HAEi member countries